A Face for Picasso: Coming of Age with Crouzon Syndrome

$18.99

Save money

Subscription members get 20% off this title (excludes sale items) and qualify for bundled delivery with your monthly book pick at checkout

Local delivery

Enter your zip code at checkout to see if this item qualifies for Local Pickup or Friday Delivery by Enderly Coffee Co.

In stock

Details

I am ugly. There’s a mathematical equation to prove it.

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome — a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.

Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.

Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

Additional information

Author

Ariel Henley

Format

Hardcover

Publication Date

November 02, 2021

You May Also Like

Recommend a Book!

Have a book you would like to see us sell on our website? We’d love to hear from you. Submit a Book Recommendation, and we will add it for you.